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Sharing data and information can be a powerful tool to engage patients and improve health outcomes. New platforms, fueled by advances in digital technologies, promise to empower patients by allowing them not only to access information, but also to produce and share their own health data and connect with their peers. 


Evidence shows that often data sharing fails to mobilize patients, that translating information into concrete actions for better health can be problematic, and that underserved populations, like less educated, low-income or minority groups may be left behind by information tools.                   


The connections between data and information sharing and patient action remain poorly understood. The Project on Transparency and Technology for Better Health will develop case studies on platforms that empower patients through information to fill this research gap. The project is supported by the Commonwealth Fund

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